Today was not a very good day for Ally. Just before I was ready to leave Pittsburgh to go home for 4 days of work, Ally decided to find a way to keep me from leaving. Ally's morning was ok, I spent the early morning hours playing Mickey Mouse and watching cartoons, waiting for Jill and Ashley to arrive so that I could make my way home.
Just after Jill and Ashly arrived to Ally's room, Ally's whole demeanor changed. She turned her head away from Jill and Ashley, as if she was very mad at them. For the first few minutes we tried to get her attention by asking her to look our way, and answer our questions, but she continued to just stare in the opposite direction we were sitting. So I then got on my knees and put my face to Ally's to explain to her that I was leaving, and wanted to know if I could get a kiss before going home. Doing this I thought it would get her attention, and typically she would say no, no Daddy don't leave, and then my kiss would come. This time nothing but a blank stare. Then Ally turned her head, her eyes rolled back into her head, and her left eyebrow and face started to twitch rapidly. Jill quickly ran for the nurses, and within seconds, Ally was unresponsive. A few seconds later what turned into what we thought was a child just being stubborn, turned into 20 people surrounding Ally trying to stabilize her and get some life back into her limp body. It seems Ally had a very bad seizure.
Of course all of this Ashley got to witness, however, we did our best as parents to remain calm and I wisked Ashley away from the room, and to a nurses station where child life folks came to take Ashley to another floor to play as we dealt wih Ally.
Ally had an emergency CT of her brain, which turned out showing nothing, and later tonight will have a MRI of her brain. Tommorrow a EEG is also scheduled.
All of this happened without warning, making this a very stressful and upsetting day. Ally currently is in the PICU, and stable. Did I mention we were supposed to come home to our Pittsburgh apartment Tuesday? That of course is not happening. Somehow our family loves to be tested of its strength and determination to remain, strong, hopeful, and positive to better days. I got to believe one day life will be easier.
If you have'nt joined Allys Angels and plan on doing so, please take this chance to donate or support the team! Its an extremely important event to us, and today is a reminder to everyone how life's events can change within seconds. Please know that just because organ donation is important to us because of Ally and our experiences, doesn't mean life events someday won't change within seconds for you or someone you love that may need organs of blood, to save their own life.
To join or make a contribution click the link "Allys Angels" off of Allys homepage. If you have questions, just email us at email@example.com.
Some helpful tips in becoming a successful fundraiser:
* Recruit friends and family to join our team and walk with you.
* Bring information of the Dash to work with you, ask your co-workers to support you for the Dash!
* Send emails and ask people for donations to support organ and tissue donation.
* Tell your friends about Ally, and the miracle that has been blessed upon her!
Let's try and make Ally's Angels the #1 team. Every dollar helps, and just might save a life.
steph / Wednesday, April 23 2008 03:40 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