- Fri, Jun 23, 2006 /
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The week trip was a busy week of fun, lots of driving, kids crying and fighting, and appointments.
We started the trip Monday and went to the mountains to enjoy a day of fishing. We spent Monday night in the mountains.
Tuesday morning we drove to Knoebels amusement park so that the girls could have some time to have fun before Pittsburgh. Ashley loved the park, Ally on the other hand wanted nothing to do with the rides. Be sure to check out the new photos on the site. You can see who was having fun, and who was not.
After about 4 hours in the park we drove another 4 hours to Pittsburgh. We finally made it to Pittsburgh Tuesday night at 8 p.m.
Wednesday morning was another busy day. We took the girls to the Childrens Museum for a day of fun and a chance to be creative. They both enjoyed themeselves. You can also see these pictures in the new album.
Thursday morning, we looked at some apartments, and made the trip to the hospital for our appointment. Everything was pretty much routine. Ally is still being treated for a line infection. Pittsburgh transplant still wants us to go to Columbus for the motility study to be sure that Ally is or is not having issues with her stomach emptying. The docs said it is important to see this because when she has surgery, replacing the stomach makes the procedure much more complicated, so if we can avoid replacing an organ, we should try to do so. So we get to take another trip west! Yeah!!!
Not much else was discussed. Ally has had some calls for organs, but the docs have declined them for reasons they did not say. They expect us to sometime in the next three months get a call that will fit our needs for transplant. So we will just keep on waiting.
Also while we were there in clinic, we got to met a little girl who we have seen numerous times at duPont. She also had bowel issues and was at Pittsburgh the same time we were in December for a bowel transplant consultation. The difference this time seeing her, was she had her bowel transplant three months ago. It was nice to see her walking around looking so good, and to have a chance to say hello. It gave us a little more hope that soon we too can get where they are. One step closer to seeing Ally healthier!
We will update again with any new changes. Enjoy the photos.