Yesterday, turned out to be a very long day but the good news is Ally is tolerating the bi-pap (at least to some extent). Unfortunately she is having a lot of withdrawl symptoms. The docs are going to re-evaluate her meds for the withdrawl later today and possibly start her on methadone.
Watching Ally struggle through the withdrawl symptoms is so difficult. Numerous times yesterday she was awake for long spells and could not get settled. She is constanly itching or picking at something. Then she'll start to cry when you try to keep her from picking. Not to mention she is pretty much having continuos tremors in her extremities. The worst part is when she gets so upset she needs to be suctioned and then the suctioning makes her even more upset so the whole cycle starts all over again. The key is finding another narcotic that can help to minimize the withdrawl symptoms.
Ally's liver numbers took a jump today so they may restart her rejection meds later today or try to hold off till tomorrow. The rejection meds are very ####### her kidneys and they are still recovering from the other week when she was so sick and had to go on dialysis. She has now been off her rejection meds for about 18 days. The docs say that the good thing is when you get very septic the body kind of ignores the liver so they very rarely see rejection at the same time.
For today Ally will probably stay on the bi-pap. Originally the docs thought they could maybe give her some breaks from the machine and use it mostly when she is sleeping. Unfortunately,last night Ally required some additional support from the machine so her settings were increased. This is of course fine with us, we would rather her stay on the bi-pap and not have to work so hard. The docs are on the same page as us and will do whatever it takes to keep her off the vent.
Now,onto the good news. Late last evening Ally and Ashley got a new baby girl cousin. Congratulations Uncle Clint and Aunt Jen! We are so excited the new baby is here and we are hoping Ally has a nice stable weekend so we can escape home and visit.
In case we don't update before Sunday, we hope everyone has a wondeful Easter holiday.
Walk information is below. Let's try and make Ally's Angels the #1 team and if we can, have Shane's contribution area be #1 so that we can win both categories for the top fundraising awards! Top single fundraiser wins two airline tickets this year. Would come in handy for Pittsburgh when Ally gets called for transplant! You can see our progress via the homepage link on the gift of life site. Keep up the great work at raising funds and awareness. Every dollar helps, and just might save a life, even Ally's!!!
If you do not feel comfortable making a donation on the web via a credit card, you can either download the online form and mail your contribution to the Gift of Life, or make a personal check out to Transplant Foundation, and we can then send your money to the Gift of Life for you. Just make sure the check gets to us in the next week.
Remember also, that if you join the team to send us your t-shirt size(s), even childrens, at email@example.com Thanks!
If anyone is interested in participating in the Donor Awareness Walk on April 22nd 2007 as a part of the "Ally's Angels" team, below are some details. If you cannot walk and would like to make a general contribution, please visit the general contribution area after you have clicked the link off of Ally's homepage.
Registration is $25 per person. This will entitle you to a FREE Gift of Life Walk t-shirt. Unfortunately they do not have children's sizes.(Children under 5 are free; however, they will not be eligible for a t-shirt). Strollers are permitted for the walk.
Remember that if you join the team to send us you t-shirt size, even children!
To Register: Visit the link off of Ally's homepage. You can join the team or click the general donation tab to Shane's area and make a small contribution there. When you register, they will ask you to do it w/a credit card. After April 16, the registration fee goes up to $30 if you plan on walking.
Walk/Run Details: The walk is a 3K (1.8 miles) walk, everyone needs to meet at the steps of the Philadelphia Art Museum at 10:45 a.m.(rain or shine) on April 22nd. The walk will begin at 11 a.m. There will be an award ceremony & refreshments afterward. You can also decide to join the 5K (3.1 miles) and 10K (6.2 miles)runs.
Sponsors: They would like everyone who walks to make a personal donation or to get sponsors to raise money for the Gift of Life.
Incentives will be given: 100-149 raised - Dash baseball hat; 150-249 raised - Dash bag; 250-349 raised - Dash hooded sweatshirt; 350-499 - Dash jacket; 500+ raised Dash warm-up jacket/pant set. Top fundraiser will receive 2 round-trip tickets from AirTran Airways. To receive an incentive all money must be received by April 22nd.
How else you can help:
You can add the donor designation to your license at anytime in Pennsylvania and Delaware by visiting www.donors1.org.
The ability to save or enhance the quality of life for patients depends on more families giving consent to organ and tissue donation. Quite simply, to ensure your wishes are fulfilled, the organ donor designation should be added to your drivers license or state ID and also discussed with your family members so they understand your decision. Then, and only then, will more lives be saved and improved through transplantation, which is why education on donation is so important.
Thank you! Please email (firstname.lastname@example.org)with any questions of if you are interested in walking.
Andrea Steffe / Wednesday, May 2 2007 02:21 PMJill, Shane, Ashley and Ally, We offer all our prayers to your family--for God to continue his watch over all of you and for good news very soon about a transplant. God bless you all.