Well, not to much to report. Ally had a pretty good week. It was definitely very busy and she manages to keep up with the pace. Her liver numbers had been up again with her labs last week so the docs decided to put her on some IV antibiotics to treat a possible infection in her liver. Needless to say she has been on this since last Tuesday and I don't really see a change in her. She will have labs done again tomorrow morning so we'll know those results by tomorrow afternoon or Tuesday morning.
I scheduled a last minute checkup appointment for Ally in Pittsburgh so we are headed out there on Wednesday. Poor Shane will be stuck at home by himself. My mom, Ally and I are headed to Pittsburgh and Ashley is headed to the Poconos with her Gram for two days. I am sure he'll manage and probably enjoy the peace and quiet. Besides when the girls and I are living in Pittsburgh he'll have a lot of quiet nights so he better get used to it. I am anxious to see what Pittsburgh has to say about Ally's labs and to see if they have any suggestions. I really think there is nothing to do and it is just normal progression of her liver disease. The only thing that will really help her is to get transplanted.
On the up swing we had a great week spending lots of time outside. We were on a couple of bike rides and Ashley now has a tandem bike that hooks on to mine (and I even manage to keep us upright, which trust me is no small miracle). The girls also spent a lot of time swimming this week and we even took some more video although, I am not sure when Shane we'll get around to putting that up (maybe Wednesday night)! Everyone keeps commenting on the video we put up last week, especially the one of the girls in the pool. On Thursday night we went to the Reading Phillies game for their Gift of Life night. Our family was recognized for the funds we raised for this years Donor Dash (by the way that was over $24,000!!!). We stayed for the whole game and the fireworks after the game. The girls had a blast and Ally got to see fireworks for the first time!
Well like I said we have been busy living life. Unfortunately all of these outings have lead to a lot of extra wash, which is what I must go do now. :(
I'll try to update after we get Ally's labs back.
Please say an extra prayer for our buddy John. He is headed to John Hopkins hospital tomorrow for a procedure. Also Shane's cousin Lisa is in the ICU at Lehigh Valley Hospital. Lisa had a kidney transplant about two years ago and now she is waiting for a pancreas. Needless to say she is battling an infection so like I said she could use some extra prayers. Lastly pray for our friends the DiCesare's. Anthony is a little boy with similar problems to Ally ( we have a link to his site from Ally's home page). Thankfully he has been doing well but his mom (Sandra) had what should have been outpatient surgery done a few weeks ago and she ended up having some major complications which kept her in the hospital for the last two weeks. All of these people need your prayers I am sure they all feel as if they never get a break.
stephanie / Tuesday, July 31 2007 06:07 PMHey guys, Glad to hear everything is still going well for Ally. You will continue to be in our prayers for more good updates. Hang in there, the living away from home can be rough and expensive.