- Sun, Jan 29, 2006 /
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Another week has gone by and Ally is still doing well! Although that doesn''t mean she is not up to some of her old tricks. Lately she has been busy ripping off her central line dressing. Many times in the past week either her nurses or I have found her with her dressing completely off and the central access point exposed. Also she is scooting around so much that her bag on her G-J tube site does not stay on for more than a day. This usually means Ally is draining all over the floor and we are always cleaning up a mess!
Mostly it is just nice to see her so active. Ashley loves having her at home and I even get great pleasure when I see them fighting over toys or the TV because I know that is normal sibling behavior. It has been so wonderful having this long spell (almost six weeks) at home.
Ally finished her IV antibiotics on Thursday night so hopefully she will make it at least a couple of weeks without any infections. She isn''t scheduled for any appointments until February 16th which is exactly one year since her transplant. That day she is scheduled with transplant and also is having a sweat test done which test for cystic fibrosis. Ally has never been tested for that and although no one really thinks she has it, transplant in Pittsburgh wanted the test done.
We also scheduled a follow up appointment for Ally in Pittsburgh which is March 16th this is supposed to be just an outpatient appointment but her transplant coordinator was going to check if Ally needs anything else while we are there. We still haven''t heard anything about Ally''s motility study that is supposed to be done in Ohio and frankly I am sick of asking about it.
Ally''s birthday is quickly approaching and next weekend we will be busy with her birthday parties and Superbowl. Go STEELERS! After all Pittsburgh will be our temporary new home. Next week we will update with some birthday pictures.
Ally''s breakfast at St. John''s church is coming up soon. Saturday Februay the 11th. Tickets are $6 for adults and $4 for seniors and children 12 and under. Breakfast will be served from 7-noon. We will soon have tickets available for Ally''s beef and beer which is Saturday March 4th. Tickets for that will be $20 a person.
Take care and have a good week.