Sorry for the long delay in updates but thankfully there has not been much to report on the past few days.
Yesterday Ally had her dialysis catheter pulled and thankfully with it out the bleeding has subsided. Unfortunately her need for blood products has not. Since the bleeding has stopped she has not needed as many blood transfusions but she still received platelets about three times yesterday and already she received them twice today. She also received some more IVIG (immun oglobulin) due to the amount of platelets she is receiving.
Yesterday and today Ally has been awake quite a bit. Most of the time she is just quiet awake and enjoys when we read her books or play a video for her. She is still responding appropriately to yes and no questions. It is hard for Shane and I to see her awake because her eyes show the fear that she must be feeling. We can tell she looks scared and sad so that breaks our hearts. On and off she becomes aggitated and begins to cry. Of course you wouldn't know she is crying if it weren't for her face and the tears. The ET tube prevents her from making any sound which also must be a little frightening for her. Right now Shane and I would be happy if she would just sleep because it would be easier for all of us.
The plan right now is to take Ally to the OR early next week (hopefully even Monday). Place a new central line and then get her ready for extubation. As of right now we don't think we will go ahead with any surgery on her stomach. We have dealt with it this long and it doesn't seem to be the source of any infection it just added to the problem a little.
Before I forget, people have been emailing about blood donation and how they can help, well we have the answers. Two blood drives have been set up in honor of Ally. Both drives were coordinated by Miller Keystone. The first drive will be at St. John's Lutheran Church in Boyertown. The drive will take place on Saturday April 7th 8-12. To set up an appointment please contact Carol Meeker at 1-800-486-2566 x125. The second drive will take place at New Hanover United Methodist Church located on Swamp Pike in Gilbertsville. The second drive will be on Monday April 16th from 2-8pm. To set up an appointment contact Sue or Harvey Hohl at 610-385-6671 or Don Green at 484-945-0232. If you have any other questions please feel free to contact Shane or I.
We will update again sometime this weekend. If you don't hear from us you can assume that no news means good news or at least it means no change. Thanks again for all the support.