- Sun, Oct 31, 2004 /
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Hi everyone, Happy Halloween! My sister and I are really enjoying this holiday. Since I'm not allowed to have candy, the nurses at duPont gave me a beautiful quilt instead. Before I forget Happy Birthday Millie!!! (In case you all forgot Millie was my night shift mommy in the Bryn Mawr NICU.)
Everyone one here thought I was so adorable in my costume. They even took pictures of me and my sister and are going to submit them so that we can be in the newsletter. You can't buy my costume it was a made by mommy original.
I'm doing pretty well. The doctors finally changed my formula to a low carb formula. It was about time I jumped on the low carb band wagon! For some reason it makes me pee a lot more, but I think my GI doctors will like that. My doctors are also going to try to get me off oxygen. That means my ventilator won't have to be hooked up to an oxygen tank. Instead, the ventilator will use room air to help me breathe.
Mommy and Daddy are ready for their 24hr stay over. Then they have a big meeting planned on Wednesday. Maybe sometime soon they will let me give out the secret date of when I am coming home. My nursing agency has nurses to cover almost all the time I need. The only time not really covered is the weekend night shift. Bryn Mawr night shift nurses are welcome to apply.( Ha Ha)
Before I go I wanted to let everyone know that the Bryn Mawr NICU staff is sponsoring a Beef & Beer in my honor. The money raised will help my parents with some of my medical costs and will help them to pay for their stay at the Ronald McDonald House. All the information is listed below. There are only 150 tickets available. So don't forget to call and order some if you would like to go.
BEEF & BEER
Saturday, Nov. 20th
King of Prussia Fire Hall
170 Allendale Road
King of Prussia, Pa.
Live Entertainment by
Tickets are $30.00 and advance sale only!
For information and tickets call:
Jeanne Ramella 610-287-4634
Joanne McTamney 610-828-3760