Well so much for coming home this week and at this point next week is not looking so good either. Ally spiked yet another temp on Sunday and this time she grew bacteria in her blood, urine, and trache cultures. Her blood cultures have been positive for two days now so the docs are getting a little concerned. Thankfully Ally has not been acting sick and has not had a temp since Sunday morning.
Ally has also been having an increase in stoma output. She was rescoped last Thursday and then again this Monday and both biopsies looked good. Transplant is thinking that it is probably related to her Milk allergy and have decided to switch her formula. Hopefully we will see an improvement in her output over the next few days.
Both of the girls are excited for Halloween. The had some trick or treaters tonight via our webcam. The girls got to see most of their cousins in their costumes. The girls also got to talk to their Daddy and both sets of their grandparents with the web cam. Ally got to do some fun Halloween activites this week thanks to her stoma nurse, Patty. She also had a girly day for Ally yesterday complete with feather boas, nail polish, lip gloss, eye shadow, hand cream, glitter spray, a new princess nightgown with a magic wand :) Ashley is going to trick or treat in the evening with some kids from her class. They do not dress up at school but are having pajama day instead.
I have been busy having training this week on Ally's homecare equipment. I am starting to feel a little panicked about having Ally as an outpatient, or maybe just a little overwhelmed. Thankfully I did have a wonderful relaxing weekend with some of my girlfriends from home. I also went out last week with Lynne and some of her friends for my birthday. We went to a Hibachi Japanesse Steakhouse and we had a really great time.
Hopefully I will get some great pictures of the girls tomorrow in their costumes and then we will add them to the site soon.