- Wed, Jan 20, 2010 /
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We wanted to let you all know that Angels for Ally will be hosting another Beef and Beer Benefit! This year's event will help to support a local family and help them to provide the best care for their daughter Olivia while she battles a rare condition, Craniopharyngioma.
Shane, Ashley and I had a chance to meet with Olivia and her family last night. What a sweet little girl! Not to mention she has a younger sister named "Ali" who loves the color red, so she did a pretty good job at winning us over too! Olivia is in first grade at Gilbertsville Elementary, where her favorite subject is art. She also told us that she loves to read "Junie B. Jones" books and that she is a huge Taylor Swift fan! Miley Cyrus's song "The Climb" also gave her a lot of inspiration while overcoming some of her most recent health hurdles.
Olivia's condition has caused her to battle brain tumors two times in her short seven years of life. The first one was operated on and was removed along with the removal of her pituitary gland. Unfortunately, at that time Olivia also lost vision in her one eye. After the surgery to remove the tumor, Olivia had to remain in the hospital for a little over four months to recover. Olivia's second tumor was detected on an MRI in the Spring of 2009. Operating again was not an option because the doctors said her body would not be able to handle another aggressive brain surgery. Instead Olivia underwent radiation treatments for 31 days to shrink the tumor.
Currently Olivia is considered to be tumor free! However, her most recent MRI does show a cyst that is very close to her optic nerve and therefore she is at risk for losing vision in her other eye. Olivia is also required to take numerous medications on a daily basis including steroids and human growth hormones. Many of her meds she will stay on for the rest of her life.
Angels for Ally would like to help Olivia and her family by easing some of the financial burdens that have been caused by Olivia's illness. Please consider joining us at this event or making a donation to help Olivia. Past beef and beer events that have been held in support of Ally and in memory of Ally, have always sold out...and we hope to do the same this year!
I am listing some more information for the event below. Thanks in advance for your support of another great event in memory of Ally.
Beef and Beer
Keystone Fire House Boyertown, PA
Saturday, February 27th, 2010
6 to 11 p.m.
with DJ, Bruce Miller
Tickets are $25
to order tickets call 484-942-8831
or email firstname.lastname@example.org
If you have a business that would like to donate an item or gift certificate that we could raffle or auction off at the event, please call or email the contact info listed above. If you would like to make a donation, please write "Olivia" on the memo line of your check and make payable to:
The Angel Ally Memorial Fund
C/O: Shane Heintz
2500 Deep Creek Rd.
Perkiomenville, PA 18074
Thanks again for your support!