- Tue, Dec 21, 2004 /
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HO HO HO! It's Santa Ally wishing everyone Happy Holidays. I hope to get a chance to write on Christmas day but things don't always go as planned.
I have some good news and bad news to report, but a lot more good than bad. On Friday I spent the day at duPont for some check up appointments. First I saw my doctor for ricketts and then I had a hearing test. My bone doctor told me it would be good to start doing weight bearing activities. Then I had a hearing test which took forever but the audiologist was very nice and she told me I had no hearing loss. When I was in the PICU I had a hearing test and they had told me I had hearing loss in my left ear.
On Saturday I was busy for Mommy, while I was sleeping I pulled out my ND feeding tube. This is supposed to mean I have to go to duPont to get a new one. However, my mommy was pretty upset and she said she refused to go to that hospital again! So, she started feeding me NG. She didn't expect this to go very well but every time she checked my residual I had nothing and I wasn't spitting up any more than what I usually do. Monday she called my doctors and they said it was great if I can tolerate being fed in my belly!
Now onto the not so good news. My mommy and daddy are pretty sad because starting January we don't have a regular night shift nurse. My nurse, Karol, is taking a position closer to her house, she normally drives over an hour to take care of me. The only nights we have covered are Mondays and Wednesdays and mommy is supposed to start working again. If any nurses out there want to, or if anyone knows anyone who does home care, please feel free to call my nursing agency and sign up for some hours! We also have no day coverage on our weekends. It is going to be a long month.
Sorry that there are no recent pictures of me, you can file your complaints with my daddy, he is the one in charge of the picture part of the website.I want to congratulate nurse Millie on becoming a grandmom and Miss Barbara, who is expecting another grandbaby. Take care everyone, only four more days till Santa!
P.S. I wasn't joking about the nursing thing if anyone is interested they can call my mommy at 215-234-9686 or you can call Harleysville Pediatric Home Care at 215-513-7455