Ally Heintz

December 2007

  • Mon, Dec 31, 2007 11:05 PM

    To start the New Year off right I thought I would write my own update. First off, Happy Birthday Daddy!!! Second, I want to thank everyone for all the prayers and support that you gave to me and my family this past year. We could not have made it without everyone's help.

    Everyone keeps telling me 2008 will be a better year but I think 2007 was pretty great. I know some people would not think spending about nine total months in the hospital as a great year but you have to look at it from my point of view. I have been given a second chance (technically third) at life. My mommy and daddy had prayed for my transplant for so long and although it has been a very long recovery I am on my way to my new "healthy" life. So like I said I guess 2008 might be better but I have no complaints about 2007 afterall I made it through the year and what else could I have asked for.

    Okay now I will update everyone on what is going on with me. I am still in the hospital. I got my line pulled and a PICC placed but since then I have been having some problems with my liver numbers being out of wack. Today I had a liver biopsy and we should have those results tomorrow. The docs don't really think it is rejection because more than likely the bowel would be showing signs of rejection. I guess they are thinking it is something with the bile ducts so later this week I may need to have a study done to check those out.

    We have still been waiting for the final word from ENT of Pulmonlogy about getting my trach out. Neither seems to want to make the final decision so I think my mommy is a little fed up and is planning to track down my ENT doc via email. I am not supposed to get my new line till next week so if we could coordinate the decanulation in that time that would be great. Otherwise I may end up coming home with my PICC for a little.

    So that is about it but before I go one last thing. Please pray for all of our friends who have lost someone in 2007 especially those that have lost a child. They are really the people who will need a better year and who need our prayers the most.

    Happy New Year
    Love Ally

    Comments:
    Aunt Jeanne:  Happy New Year beautiful! You are right..even though 2008 will be great, 2007 wasn't too shabby either! I pray that each new year will be better and better as you grow into a beautiful young woman. But not too quickly...Daddy has enough gray hairs ;) And speaking of, Happy Birthday Shane! Miss you and can't wait to see all your smiling faces...
    Hugs and kisses to everyone...
    Aunt Jeanne
    uni-brower:  Happy New Year to all--we all now that 2008 will be bright & shiny--Happy birthday Daddy- the prayers are still coming Health to All
    phil h:  Happy New Year and Best wishes for 2008.

    I hope the new year is better for you than 2007

    The Bollingers:  Happy New Year...2007 was quite a year for you but 2008 is even going to be better. Our thoughts and prayers are always with you. God Bless.
    winky bergdoll:  Happy New Year Sweetie! I agree 2007 was good for you as it brought answers to Mommy and Daddy's prayer {a lot of other peoples, too!!}.
    Happy Birthday to your Daddy and wishes and prayers for a good year for all of you!
    May God Bless You!
    Dawn Stinnard:  Good Morning and Happy New Year, hope you got to celebrate early in the evening with the other children. Celebrate the new year with a zest for life. We will keep everyone in our prayers.
    Sheila Little:  Good Morning sweet Ally, 2007 was quite a year & I know 2008 is going to bring you and your family lots of health and happiness :) We love you and can't wait to see your smiling face again soon!
    MJ/Angel_Wings:  Morning Ally I pray that you had a good nights sleep and that today, the first day of 2008 will be a bright and shiny one for you. Please know that as always you are being surrounded with love and prayers. Hugs
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  • Thu, Dec 27, 2007 9:54 PM

    Waiting, waiting, waiting, the past four years of my life have been waiting. Well needless to say we are still waiting for Ally to have her line pulled. She was supposed to go to IR today and have it pulled and a PICC placed but we ended being bumped off the schedule. Now she is supposed to be the first case tomorrow so we will see. We are also still waiting to see if she can come home with the PICC or if she will have to wait to come home next week after she has a new central line placed.

    We are also still waiting for Pulmonology to come by and see Ally. I told the transplant staff that I was fine with Ally not getting discharged until next week if they add decanulation into the plan for the next week! It never hurts to ask.

    Some of Ally's liver numbers have been up so late this afternoon she had an ultrasound done of her bile ducts. We should get these results tomorrow morning. We also finally got some confirmation on Ally's latest ECHO and the cardiologist feels everything looks normal.

    The girls have been having a lot of fun playing with each other and one other little girl that is a transplant patient. Today was her birthday so the girls got to go to the Birthday party tonight (which sadly enough was in a conference room down the hall). However when you have pizza, ice cream, and a Hannah Montana birthday cake who cares if you are stuck in the hospital!

    Jill

    P.S. if you didn't get a chance to check this out yet make sure you check the link listed on the homepage to the Heintz Elf family.

    Comments:
    uni-brower:  Thinking of you all--we all know that you all will be home soon-take care Love to all
    Jodee Reid:  The waiting always gets to me too! Thinking of you all and of course hoping Ally gets well and home again soon!
    The Bollingers:  Love the Elf Family video.
    The Bollingers:  Doesn't matter where you party as long as you have a good time. So good to hear that Ashley and Ally are having fun together. Ally will be home soon and we all can party! Our thoughts and prayers are with you.
    Jeanne:  Love the elf family! I bet the girls get a real kick out of watching the video. I am so glad that they were able to have a nice Christmas in spite of being in the hospital. Have fun at the party today. Hannah Montana rules! Hugs and kisses to you all...miss you much
    Love, Jeanne
    Pastor & Kathy Pearson:  Parties are great! Enjoy. We'll celebrate when Ally is discharged soon. --Pastor and Kathy
    Sheila Duffy:  I know that Birthday Girl!! Happy Birthday !! And nice to see fun pictures of Ally & Ashley!
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  • Mon, Dec 24, 2007 2:13 PM

    Sorry to keep you all waiting for an update. Ally is doing much better and Ashley has gotten her appetite back which should help her to get better. Ally was moved to the IICU late Saturday and yesterday I talked the doc into letting her be sent up to the transplant floor. Being up on the floor should help her to get some rest since she will have a private room.

    Ally has yet another line infection. She is growing the same bacteria in her line that she was growing before when she ended up with endocarditis. Infectious disease first thought they would try to treat the line with yet another IV antibiotics plus antibiotic locks. However today was the fourth day of positive blood cultures so she will have to have her line pulled and a temporary PICC line placed. Interventional Radiology will try to get her in for Thursday and then she will probably have a new line placed next week. This line got infected just two days after it was placed and it has been nothing but infections ever since so I am all for having it removed.

    While we are inpatient the docs will put in a Pulmonology consult to see about having Ally's trach removed. Getting the trach removed could ultimately help us get rid of the central line too. When the trach is in it is much more difficult for Ally to eat or drink. However if she had the trach out then we could push her to drink more and then she would not need to rely on IV fluids for hydration. Anyhow, things move much more rapidly when you are an inpatient so we will see what we can do.

    That is about all that is going on. We did get to do some fun stuff with Ashley this weekend while her grandparents were in town. She finally got to try out ice skating down at the PPG building and yesterday we took her to see the Polar Express at an Omnimax theater. Not to mention she opened all her gifts from both of her grandparents so she has plenty of new toys and other things to keep her busy.

    I hope everyone has a wonderful Christmas. As for us we will have a great Christmas despite being in the hospital.

    Merry Christmas,
    Jill

    Comments:
    Chad and Sue H.:  We think of all of you often. We hope that you had a wonderful Christmas and wish that the New Year is much less eventful than 2007. Pictures of the girls are great!
    Dawn Stinnard:  I love the photos, especially the scrubs. She'll fit in perfectly with the nurses. Watch she might become part of the staff. It's nice to see them smiling and having fun. Hope you and Shane had as much fun as the girls. Bless the family and know your in our prayers.
    The Bollingers:  Looking at all the pictures it looks like everyone had a wonderful Christmas dispite being in the hospital. It didn't seem to damper the holiday spirit. Our thoughts and prayers continue for all of you.
    uni-brower:  We want to wish you all a Merry Christmas and xtra prayers for our little Ally to come home soon--Love to all
    jodee reid:  Merry Christmas to you all. Wishing you a less eventful year for 2008.
    AuntSherry & Uncle Wally:  Merry Christmas to all of you. We are thinking of you today.. Glad to hear Ashley is doing better, hope to hear good new for Ally also. You are in our thoughts and prayers always.
    Love ya,
    Luis & Cheryl:  Ally, Ashley, Jill & Shane,
    We wish you a very Merry Christmas and you be blessed with health, peace and happiness this coming 2008!!!
    Michelle Wallace:  I just wanted to wish you a Merry Christmas and tell you that I think and pray for you daily. I haven't commented before, but I wanted to reach out to you today. Your whole family is such an inspiration to me. Love you
    phil h:  Merry Christmas Heintz family
    D.Stinnard:  Merry Christmas hope it is as fun as you can make it being in the hospital again. Hope the girls both feel well soon and everyone can came home soon. God Bless and know you're in our prayers.
    Audrey Eddinger:  Merry Christmas to your whole family, hope things go well with Ally. Glad Ashley is doing better. God Bless
    Nurse Karen:  Wishing you a peaceful joyful day today. The Lenker Family
    Cheryl & Tom:  Merry Christmas to you and hope Ally comes home soon.
    Eileen:  So glad to hear Ashley is out and feeling better, she looks like she had a fun ice skating,it's wonderful that you continue to fit in fun activities for her. Ally, as always, is amazing! Here's hoping for decannulation-soon! Hope all of you have a terrific Christmas, being together is what matters, looking forward to this year's video!
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  • Fri, Dec 21, 2007 10:01 AM

    Good News!!! I just brought Ashley home from the hospital.

    Bad News!!! Ally was admitted to the PICU at 4:30 this morning. Shane had called me home last night because Ally was not able to keep up her O2 sats and was really working to breathe. By the time I got home she had a fever and was vomitting. The ER docs thought it was best to place her on the vent to give her a little rest. She calmed down pretty soon after that. She has been started on some high dose stress steroids to help stop whatever this is we are fighting. When I left to bring Ashley home Ally was getting an ileoscopy.

    We will try to update later when we know some more.

    Jill

    Comments:
    D.Stinnard:  Sorry my mistake it's not Jordon it's Logan Sorry. please pass our prayers along.
    Dawn Stinnard:  God Bless you and the family in this time of need. Keep up the faith that everything is going to be fine. The faith in the season and the hope that everyone will be home for Christmas. P.S. Please let Melissa know she is also in our prayers during the holidays. Hopefully it will give her strength to make it through at this time of year. We'll hang a star for Jordon and the girls. Bless you and Merry Christmas.
    Carol Yeager:  Please give the girls all my prayers and tell them to continue to be strong I know they must get their strength from their mother.God Bless and keep the faith.With all our love allways
    Pastor & Kathy Pearson:  We pray O Lord for you to heal Ally. We give thanks for Ashley's good progress. Watch over Jill and Sbane. Grant them strength and patiene. In the name of the coming Christ, Amen.
    Carolyn Wing/Angel_wings:  I am so sorry you are in the hospital and I pray you will get better soon. Hugs and prayers.
    Robin - Angel_Wings:  Praying you are feeling better soon! And praying Ashley continues to get better also! Praying for Mommy and Daddy also, so they can stay 'sane' throughout all of this!

    Sending GREAT BIG Angel hugs, smiles and rainbows!
    The Bollingers:  Glad to hear Ashley was able to come home but saddened that Ally needed to be admitted. Stay strong Ally, you are in our thoughts and prayers.
    Trish/Angel_Wings:  We are surrounding you in all our prayers sweetheart for healing..
    Trish/Angel_Wings
    Jodee Reid:  Jill and Shane
    I guess the roller coaster is not letting you off just yet. Praying that you can bring Ally home for Christmas and that this is just a minor set back.
    Carol Brothers:  Hi Ally,
    I am so sorry to hear you are in the hospital. I am praying hard for you to get back home quickly.

    Love and prayers.
    Carol/Angel_Wings
    MJ/Angel_Wings:  Morning Ally I am so sorry you are in the hospital, I am praying the Drs can quickly find and treat the problem. Hugs precious little girl, know that you are being surrounded with love and prayers.
    phil h:  Glad to hear tht Ashley came home, and let's hope for another short stay for Ally in the hosptial
    Lindsey Riegner:  I know this is a very trying time for all of you, but hang in there. The confidence that you have in your children's bravery is amazing and I'm sure it's giving them both the drive to fight!! Tell Ashley that I don't anyone's ever looked cooler with an IV!! ;-) Keep those smiles going! As always, I'm here if you need anything!
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  • Thu, Dec 20, 2007 1:37 PM

    Ashley is still in the hospital, and most likely will remain there for for a few more days. The cultures came back positive for C-DIF. This is usually something you catch by touching surfaces and then, touching your mouth or nose. I'm sure Ashley picked it up at the hospital. The bacteria attacks the colon, causing severe diaherra, vomiting, and in worst cases blood in your stool.

    Ashley of course has had all of the worst symptoms you could get with C-DIF. Currently she is taking Flagyl twice a day to help treat the bowel. The docs said she needs to have less stools with no more blood in order to come home. C-DIF is a very serious bacteria, and in some people can become a lifetime disease.

    To top all of this off, Ally has been acting a little off today. Currently she has been needing oxygen to take naps. Our worrying is Ally may have caught some of the C-DIF spores. Guess we will see how things go over the next two days.

    Please pray that Ashley's bleeding resides, and that Ally can stay infection free, and not catch the C-DIF. If Ally catches this, it could kill her.

    Shane

    Comments:
    Cheryl H:  Jill and Shane,
    I am headed over to the church tonight. I'll light a candle for each of you. I'm so glad to hear that Ashely is home. C-diff is such a nasty bug. Hopefully with all the prayers Ally can join her soon.
    Miss you all & think of you daily,
    Cheryl
    uni-brower:  our prayers are for our little girl to get healthy and start to feel better soon.We will say xtra prayers for all of you guys
    Carol Yeager:  Guess its true whaen they say
    Cheryl & Tom:  Sending many many prayers for your family at the Christmas time. Please know that we are praying for Ally's continued improvement, Ashley's recovery and for strength for the entire family
    The Bohn Family:  Dear Jill,Shane,
    You and your girls are in our prayers. Hope Ashley will feel better soon,and Ally is recovering every day. Our hopes to your family that you will all be together for Christmas.
    jodee reid:  HI Jill
    Sorry to hear Ashley is in the hospital. This must seem like a nightmare. We once had Matisse in one room in the hospital and Kalani in another it was a very stressful time! Hope both girls get well enough so you can all enjoy the holiday together at your home away from home.
    The Davidheiser's:  Jill and Shane, our prayers are with you every day. We will send extra for all of you. We hope that Ashley can get stronger to come home and that Ally can stay well. Keep the faith and know that everyone is pulling for you.
    Sarita Staines:  I have added you to our prayer chain for Ashley's recovery, Ally's protection and a healthy quiet Christmas at home together.
    Andrea Steffe:  Jill and Shane, Please know that I am praying for all of you--especially that Ashley recovers soon from her infection and that Ally does not have it, too. I will also be praying that both girls will be home for Christmas.
    The Bollingers:  Our thoughts and prayers are with you. Ashley will fight this disease and Ally will be strong and avoid it. Our wish is that everyone will be together for Christmas. God Bless.
    Pastor & Kathy:  Heavenly Father, we pray for healing for Ashley as she fights this infection and we pray that Ally would be protected from it. Pour out on Shane and Jill and extra portion of your love. Grant them strength and patience. In the name of the great gift of Christmas, Jesus our Lord. Amen.
    Susan:  I know exactly what you are going through. My 5 year old son is being treated for C-dif since last Monday. It is torture for the kids. Hang in there the flagyl has done wonders for him. Hand washing, hand washing, hand washing. Hopefully Ashley can get out soon and you can all enjoy a wonderful Christmas at home in Pittsburgh.
    phil h:  I will say something in Sunday School, and we will pray for both girls
    Steph:  I am so sorry to hear about Ashley.. Oh it must be hard having two children, wanting them to be able to play together but knowing how sick ally can get... My prayers are with you. I know its hard as an adult transplant pateint.. cant imagine what you go through as a parent of a transplant child... keep an eye on that little ally... Can they do anything preventive for ally? I know my docs would do that sometimes if they knew I was exposed. Hang in there. THings do get better... you will catch a break..
    Brenda & Rod:  we are saying extra prayers for ashley and ally and of course for both of you shane and jill, hopefully you will have a wonderful christmas as a family and the new year will be brighter, may ashley get well and ally stay well with NO infections. keep the faith.
    Dawn Stinnard:  God Bless you all for all you have to go through. Hope Ashley is feeling better and will be home soon with no side effects, and Ally doesn't come down with it. We'll keep praying for the family. Hopefully everyone will be home for Christmas. God Bless
    Angela Houck and Family:  Shane and Jill,
    Our thoughts and prayers are with you all the time. We check Ally's site constantly to keep updated on your triumphs and struggles. We will say many extra prayers for you at this difficult time. We pray that Ashley is feeling better and able to come home soon, that Ally is able to stay healthy through all of this, and for strength for the two of you to make it through this.
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  • Wed, Dec 19, 2007 1:30 AM

    The drama never ends for our family. Ally was released from the hospital late yesterday. She had a central line infection, of course. So all of this is the good news. Ally is home......but Ashley is not.

    Ashley for the last couple of days has not been feeling well. Today she took a turn for the worse and became very dehydrated, and was vomiting non-stop. Needless to say we had to take her to the ER tonight, and currently was just admitted to the hospital! She has been getting fluids non-stop through an IV in her arm, and cultures were drawn. We should know more tomorrow.

    You know if its not one child, it might as well be the other. These last four years have been difficult, and every time we think we may be making progress, our strength is tested again, and again. At some point life has to get a little easier, right?

    Shane

    Comments:
    Johanna:  Great to hear ally is back home again, and I'm sure Ashley will not be far behind! Have a wonderful Christmas and a Happy New Year! Johanna
    Carol Yeager:  The LOrd up above knows just how to test our strength and tis is your testing time,I suppose Just keep on praying and I know that things will be ok in the long run for you and your family
    God Bless
    Margaret Huber:  Please know that are hearts and prayers are still with your family. We appreciate the updates on Ally's condition and have been following her progress constantly. We hope Ashley will be home with all of you for Christmas.
    Children's School Kindergarten:  Please tell Ashley we're hoping she gets well soon and we miss her. Let us know if there is anything we can do to help.
    Jeanne:  Wow! I'm glad to hear Ally's feeling better and will be home for Christmas. I'm sure Ashley's visit will a short one also. I guess it's a little strange for her to be on that side of the bed. Please give both of those sweet girls a big hug from all of us here. I will keep praying that you guys get some peace and are able to celebrate the holiday as one family under one roof! Much love and good thoughts to you all...
    Love, Jeanne
    The Davidheiser's:  It's wonderful to hear that Ally is back home. After Ashley gets there, you'll all be together and hopefully, you'll be able to spend Christmas together as a family. We will pray for that! You all deserve it!
    Jeff & Kathy:  We're so glad to hear the news about Ally and pray that Ashley will soon be back to normal. God's blessings to all of you as you deal with all that's been put on you. You're in our thoughts and prayers.
    Oscar S.:  Knowing why we really celebrate Christmas, we pray that your entire family experiences a
    Kathy Hyland:  Shane, I hope Ashley starts feeling better and Ally continues her progress. I don't know how you and Jill do it! Take care, my positive thoughts are with you, I hope you all have a happy, healthy, and uneventful holiday.
    Sandy Maicher:  Our prayers continue to be with all of you for strength and healing for everyone. As parents we always seem to find the strength to do what we need to do for our children. I'm glad that Ally was able to come home and I'm sure Ashley will be home soon also. God Bless all of you.
    phil h:  glad to hear thta Ally's home, and I will pray for Ashley and hope that it's a short visit for her as well.
    My 6th grade teacher Mr. Trainer always said in class that patience is a virtue. Isn't that the truth.

    Yes Shane, things do get eaiser
    The Bollingers:  We are happy to hear that Ally is home and hoping that Ashley will feel better soon so she can be home as well. Our thoughts and prayers are with you. God Bless.
    Pastor & Kathy:  Grant patience, O Lord, to Shane and Jill and grant healing to Ashley. Strengthen her each day. We give you thanks that Ally is home and we pray your healing for her. We give you thanks for the great gift of Jesus. In his name, Amen.
    MJ/Angel_Wings:  Morning I am so thankful Ally is home and I will be praying for Ashley will recover quickly and be able to come home. I will be lifting you all up in prayer.
    Keri:  I think if you wrote a book, people would not believe the stories are true! I hope Ashley recovers quickly and that Ally keeps improving. I'm wishing for a joyful, peaceful holiday out of the hospital for all of you!!
    Diane:  I'm happy to hear Ally is better and at home and hope that Ashley will soon be home, too. I prayer that you will find yet more strength and patience to get beyond this latest bump in the road.
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  • Fri, Dec 14, 2007 12:18 PM

    Well, so much for staying at home. Ally is back in the hospital. After putting her to bed last night, we discovered she was breathing much faster and also had a slight fever. At about 2 a.m. her fever reached 102. We quickly took her to the ER, and then was admitted to the hospital at about 7a.m.

    Ally had a rough night and currently is sleeping.
    Anti-biotics were started this morning, and an x-ray showed her right lung was a little hazy. If we had to guess, it may be a central line infection. Needless to say we will be in the hospital for awhile, at least until Ally is feeling better.

    Will update again soon with any new information on Ally's health.

    Shane

    Comments:
    Noelle:  Sad news so close to Christmas. I am sure that while she was home, every minute was cherished. That I am sure Ally is thankful for. At lease there was enough time to sit with Santa!
    mbh:  My thoughts and prayers, as always, are with you. Please, doc's, get Ally home for Xmas!
    steph:  Sorry to hear she is back in the hospital. I am glad you got in quickly. Unfortunately (as you know) life of a transplant patient is unknown day to day... but it does get better... even with all the organs.. We will pray she can get out for christmas. Glad you got a trip in to new york.
    take care steph www.caringbridge.org/visit/stephanie6
    Carol Yeager:  I wa so sorry to hear about Ally being in the hospital again but just dont lose your faith and I am sure things will be ok in time .I send my best wishes and also good tidings to all of you and I will keep Ally in my prayers. GOD BLESS
    Sandra DiCesare:  We had not checked in with you guys since last week. We are so sorry Ally is back in the hospital. Hopefully she is feeling better. We are always thinking of you. Hope to talk to you soon!!! Love and hugs to all of you!!!!!
    Jen Harmer:  So sorry to hear Ally is back in the hospital. I am keeping my fingers crossed that she will be well enough to return home in time for Christmas. Take Care.
    uni-brower:  So sorry to hear-but it's only a little set-back-xtra prayers-- hope all are well
    Dawn Stinnard:  Sorry to hear the news. Hopefully everything will clear up quickly and you will be home soon. The family is in our prayers.
    The Davidheiser's:  We were so sorry to hear that Ally was back in the hospital. Our prayers continue for her and the whole family. Hopefully you can be back together again real soon.
    Carol Brothers:  Ally, I am so sorry you are back in the hospital. I am sending up prayers that the fever and infection are gone quickly and this is a short hospital stay and you are back home for for the Holidays.
    Love and Prayers,
    Carol/Angel_Wings
    The Bollingers:  Sorry to hear Ally is back in the hospital. Stay strong Ally and you will be home soon. Our thoughts and prayers are with you.
    Aunt Jeanne:  hi sweetie! Sorry to hear you are back in the hospital. I hope that it is a very short visit and you will soon be home again to enjoy Santa and Christmas. Many prayers and hugs coming your way...
    Love, Aunt Jeanne
    Pastor & Kathy Pearson:  Our prayers continue for healing for Ally and for patience for Jill, Shane and Ashley. We pray that this set back will be brief and that Ally will be back home soon. Pastor and Kathy
    phil h:  Sorry to hear that Ally is back in the hosptial. Let's hope and pray that it's a short visit and she'll be home for Christmas
    MJ/Angel_Wings:  Ally I am so sorry you are in the hospital. I am praying for the Drs to find the cause of your fever quickly and hae a perfect course of treatment for you. As always you are in my thoughts and prayers. Hugs and Angel Kisses
    Carolyn Wing/Angel_wings:  Ally: I am sorry you are back in the hospital. I am praying that the doctors can find the sourse of this fever and treat it so you can go home soon. Hugs and prayers.
    The Owens Family:  We pray for the day when a CLV is a thing of the past. Those darn things! Always giving us problems. Thinking of you ALL.
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  • Tue, Dec 11, 2007 9:51 PM

    Ally has been home for nearly two weeks and it has been absolutely wondeful (and completley exhausting). She looks great and is doing her best at getting around and keeping up with Ashley. It is so great to see the girls laughing and playing together.

    The last two weeks have been filled with more appointments then I can count (today we had four). Ally was seen in transplant clinic twice last week and they made some med changes at both visits. She also had PT and OT two times last week. Ally also had a scope last week and one done this morning. Overall things have looked pretty good on the scopes they just wanted to double check some things that showed up on the biopsy last week.

    Today Ally had PT, OT and an appointment with Nephrology for her out of control blood pressures. The renal doc prescirbed yet another blood pressure med so hopefully this one will help. Yesterday Ally had a bronchoscopy and her ENT doc felt that there is no reason to keep the trach. He would like us to schedule with Pulmonology just to be sure everything is good and then they will schedule for decanulation. Hopefully we can get this done in the beginning of next year.

    I can not even begin to tell you how busy my days have been. Ally is on so many meds that I could fill my days by just giving meds. Shane and I did get a nice break this weekend when we went to New York City for my work Christmas party. It made for a very hectic weekend but I was glad we could get away and so thankful that my Mom was here to take care of the girls.

    Otherwise we are just busy getting ready for Christmas. I hope you all enjoyed the pictures of the girls visit with Santa. They both were excited and even told Santa what they wanted for Christmas. Ashley seems a little disappointed that we will be in Pittsburgh for the holidays but we will make the most of it. Later this week we will put up our Christmas tree and we are hoping to get out and do some other Christmas activities this weekend.

    The updates will probably be less frequent now that Ally is home. I will update sooner if there are any major changes otherwise I just really don't have the time to update. I hope everyone is enjoying the holiday season. I will definitley update before Christmas.

    Jill

    Comments:
    D.Stinnard:  Happy hoidays to the family may they be bright with laughter and fun. You'll all be home in our hearts and prayers. The time is hectic but the news sounds good. so enjoy time together.
    sheri waldman:  I am so glad that you guys are able to spend this holiday season as a family all together at home. Everyone has been praying so hard for Ally and her recovery, as well as for all of you. God bless you all and may you have the best Christmas ever!
    Margaret Ann:  Happy Holidays
    Carla Brodbeck:  You are all in our daily prayers. You deserve this time with your girls and, hopefully, some time to yourself. Although you have many doctor's appointments, they all sound like they're echoing good news. Praise the Lord! You have a wonderful Christmas. We all look forward to updates, but you just enjoy
    phil h:  Glad to hear everythings going well, and that Ally is getting better. It's just amazing what the power of prayer can do. MERRY CHRISTMAS AND A HAPPY AND PROSPEROUS NEW YEAR AND BEST WISHES FOR 2008
    The Bollingers:  So happy to hear that everything is going well for Ally. It takes a real angel to do everything that you have done and continue to do. It is nice that you are able to get away and enjoy yourself for a while. Your in our thoughts and prayers. God Bless.
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  • Mon, Dec 3, 2007 9:14 PM

    Please continue to keep Logan's family in your prayers. Logan's little body could no longer take the stress it was under and he is now at peace. There are no words to explain Logan's family's loss but I think his mom put things in perspective when she wrote the following on Logan's website. "It is hard to comprehend that Logan is not coming home, but he is home"

    Hug your children a little harder today, they are such a precious gift.

    Jill

    Comments:
    Brady & Andrea Reed:  Shane and Jill, We are so incredibly pleased that your family will be able to all be together and celebrating Christmas at home! We pray for all of you each night, that God will give you the strength to get through this together. Our prayers will certainly be with Logan's family as well. We miss you guys! Love, The Reeds
    Tracy Lambeth:  Shane & Jill: Writing you all the way from Phoenix, AZ. I have to admit that with our recent move, I've been remiss in checking your website for updates. I am THRILLED to see how well Ally and Ashley are doing, and of course, so sad to hear of the passing of Logan. God bless his family during this time of grief. I will make sure to hug and kiss my twins a little more often than I regularly do tomorrow. Much love and continued prayers are being sent your way...
    Johanna:  What wonderful news! I've been out of town for over two weeks and come back to this wonderful update! Congratulations to everyone!
    Carol Yeager:  PLEASE send our sympathy and prayers to Logan's family and we all hope that they know that they are in our thoughts and prayers each and every day. May GOD bless and keep giving them the strength and belief that will carry them through these sad times.sincerely your's The Yeager's
    Dawn Stinnard:  Bless Melissa and know God has healed Logan. We all pray for the family and friends who know a wonderful young man. May God take care of you and give you strength in this time of need. Bless you.
    Kathy & Jeff:  Our hearts and prayers go out to Logan's family. There is no pain so deep as the death of a child. We can expect to lose our parents to death, and perhaps our spouse, but not our children. We had identical twin grandsons born way too soon (24 weeks, a little over one pound each). Our precious Jonas did not survive. His identical twin, Hiram, is now 5 and has some struggles. You are so right that our children are such a precious gift. The NICU experience gives an entirely different perspective of life and of what's truly important. Please know that we, as many others are, continuing to lift up you and your family in prayer before the Lord. May God give you the strength and wisdom you need for each day.
    phil h:  Please give Logan
    phil h:  Please give Logan
    The Bollingers:  Sorry to hear about Logan. The pain little ones go through, doesn't seem right. As his mom said, he is home. Our prayers continue. God Bless!
    Deanna Johnson:  Melissa is such an amazing mother and I hope and pray that she has comfort in knowing that Logan is at peace. Please call me for we can all use some support during this difficult time with our children. Deanna (Zac's mom) 410-409-6552
    Pastor & Kathy Pearson:  Heavenly Father, Thank you for Logan's life with us. Receive him now to your nearer presence. Send the comfort of your Holy Spirit to his Mom and all those near and dear. Remind us again of the good news of Jesus' Resurrection and the promise of life in your kingdom. Amen.
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  • Sat, Dec 1, 2007 8:38 PM

    Please say a lot of extra prayers for our friend Logan. Logan's condition has become very serious today and he and his mother need these extra prayers so that they can make it through the next few days.

    Thank you,
    Jill

    Comments:
    uni-brower:  they are on our list--give them a hug for us
    Dawn Stinnard:  Logan and family are in our prayers too. Hope all goes well. Your family is always in our prayers too. Hope you are enjoying the kaos at home. Prayers to all that need them.
    phil h:  our thoughts and prayers are with Logan and his family
    The Bollingers:  Our thoughts and prayers will be with Logan and his mom along with your family.
    Pastor & Kathy Pearson:  Heavenly Father, send your healing power to Logan. Watch over him and his mother in these hours of anxious waiting. Amen.
    MJ/Angel_Wings:  Jill I will be keeping Logan and his Mom in my prayers. I hope you are all well and precious Ally you are in my thoughts and prayers Hugs
    Sandra:  We will Add Logan and his mom to our prayers!!!! Thinking of you all and hope you are all settled and enjoying time as a family. Hope to talk to you soon!!!!!
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