Ally Heintz » June 2006 Journal Entries » AboutMyBaby - online baby scrapbooks, photo albums, videos, birth and pregnancy announcements

< > June 2006

Fri, Jun 23, 2006 10:30 AM
The week trip was a busy week of fun, lots of driving, kids crying and fighting, and appointments.

We started the trip Monday and went to the mountains to enjoy a day of fishing. We spent Monday night in the mountains.

Tuesday morning we drove to Knoebels amusement park so that the girls could have some time to have fun before Pittsburgh. Ashley loved the park, Ally on the other hand wanted nothing to do with the rides. Be sure to check out the new photos on the site. You can see who was having fun, and who was not.

After about 4 hours in the park we drove another 4 hours to Pittsburgh. We finally made it to Pittsburgh Tuesday night at 8 p.m.

Wednesday morning was another busy day. We took the girls to the Childrens Museum for a day of fun and a chance to be creative. They both enjoyed themeselves. You can also see these pictures in the new album.

Thursday morning, we looked at some apartments, and made the trip to the hospital for our appointment. Everything was pretty much routine. Ally is still being treated for a line infection. Pittsburgh transplant still wants us to go to Columbus for the motility study to be sure that Ally is or is not having issues with her stomach emptying. The docs said it is important to see this because when she has surgery, replacing the stomach makes the procedure much more complicated, so if we can avoid replacing an organ, we should try to do so. So we get to take another trip west! Yeah!!!

Not much else was discussed. Ally has had some calls for organs, but the docs have declined them for reasons they did not say. They expect us to sometime in the next three months get a call that will fit our needs for transplant. So we will just keep on waiting.

Also while we were there in clinic, we got to met a little girl who we have seen numerous times at duPont. She also had bowel issues and was at Pittsburgh the same time we were in December for a bowel transplant consultation. The difference this time seeing her, was she had her bowel transplant three months ago. It was nice to see her walking around looking so good, and to have a chance to say hello. It gave us a little more hope that soon we too can get where they are. One step closer to seeing Ally healthier!

We will update again with any new changes. Enjoy the photos.

Comments:

Add a comment:

Name: Email:
Comment:

Notify me of scrapbook updates
Sun, Jun 18, 2006 9:40 PM
Saturday we spent about 4hrs in the ER, while Ally received her first dose of antibiotic. After that was complete we headed home to get ready for the long week ahead.

Today we had a somewhat normal day. Spent all of the day with family hanging at the pool and watching racing. We also found out that we will not be making our trip to Columbus, Ohio for Ally's motility study. The doctors at duPont called Ohio, and once they found out that Ally had a line infection, they declined to see us. Not sure what will happen now that we are not having the study.

The plan for this week is to leave tomorrow for a trip to the mountains, spend a night or two there, maybe stop off at an amusement park so the girls can enjoy some rides, arrive in Pittsburgh Wednesday afternoon, then onto our appointments for Thursday with transplant. After that we may spend another day looking for an apartment to live in later on, and Ashley is dying to go back to the childrens museum in Pittsburgh. Sounds like a vacation, but most times turns into work. Some how we are always on the go. We thought since we had the time off and have to go to Pittsburgh anyway, why not try to make the trip enjoyable for the girls, and make a mini vacation. Who knows when we will ever get a chance to take another family trip, so why not now.

We will update again from Pittsburgh sometime Thursday or Friday. Until then...Happy Father's Day!

Comments:

Add a comment:

Name: Email:
Comment:

Notify me of scrapbook updates
Sat, Jun 17, 2006 8:00 AM
Another quick update. Last night at 11:30 duPont called to say Ally had another line infection. They wanted us to bring her right away, but we refused. Instead we are headed to the ER this morning, and may return home later today, hopefully.

This could really change the palns for the rest of the week. Monday we are to leave for Columbus, Ohio for three days so that Ally can have a motility study done of her small bowel, and then on the way home we have two days of doctor appointments at Pittsburgh. A week to really look forward to. Looks like the fun starts today instead of Monday. Yeah!!!

We will update again soon.

Comments:

Add a comment:

Name: Email:
Comment:

Notify me of scrapbook updates
Wed, Jun 14, 2006 11:05 PM
Sorry for the long period of time without an update. Just know that if there is no update, things are going ok. Ally is doing much better after a week of antibiotic treatments to fight off the last infection.

Ally is scheduled for appointments at duPont tomorrow, and hopefully Jill and her will have time to stop by and see the Maichers.

We will update again tomorrow with any results found, and fill you in on the upcoming plans that we have for next week and all the hospital visits.

Stay tuned . . .

Comments:

Add a comment:

Name: Email:
Comment:

Notify me of scrapbook updates