Ally Heintz » November 2004 Journal Entries » AboutMyBaby - online baby scrapbooks, photo albums, videos, birth and pregnancy announcements

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Tue, Nov 23, 2004 10:40 PM
Just wanted to write and let you all know that I am back at home again. I came home yesterday, but not until about 7pm and mommy said that we were too busy to write an update. I'm feeling well again, I basically just had a cold. Unfortunately, I think I gave my cold to my big sis because she wasn't feeling well today.

Mommy and Daddy said that they had a lot of fun at my beef and beer. They are so grateful for all the help and all the support they have received. So thank you, thank you, thank you, everyone! I'll write again soon. Goodnight and kisses

Love, Ally

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Fri, Nov 19, 2004 8:14 AM
Well, bad news. Ally is back in the hospital at duPont. The last few days she has been having breathing difficulties, and after calling the hospital to see what to do to help her, they suggested we bring her in immediately. So last night at 7pm we made the trip. The first hour of driving Ally seemed fine, it was the last 5 miles that gave us the scare of our lives. I was driving, Jill was in the back seat with Ally, and my mother was riding up front with me. When Ally thought she'd make the trip a real heart stopper.
Literally. Ally all of a suddened started
d-satting (low 40's) and then stopped breathing. Thankfully, Jill started bagging her and slowly Ally came back around. Some how after speeding through numerous red lights and running people off the road, we made it to duPont. Ally is now resting comfortably in the PICU. It seems she might have picked up a virus. Jill and I are both praying this is a short stay. I guess well wait and see.

p.s. Jill and I are still going to try to make it to the beef and beer.

Shane

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Sat, Nov 13, 2004 9:30 PM
Hi everyone, just writing to tell all of you how well I'm doing. My first week home went pretty well. I tried my best to behave. The only naughty thing I did was I pulled out my NG tube today. Mommy and my nurse where going to re-tape it after they finished my trache care, but I decided I wanted a new one! For those of you who don't know having an NG tube put down is no fun, but I'm so used to it that I don't really get upset about it.

Everything else has been great. I love playing with my sister I keep my eyes on her all the time. Mommy and Daddy get so happy when they see me and my sister play together. Ashley is really good at being the little helper for Mommy. She even has her own stethoscope and she listens to me breathe. She will be a great nurse or respiratory therapist one day!

I have to go catch some Z's now. Mommy and Daddy are alone with me tonight, no nurse. I think they'll do okay. My nurse for tomorrow is coming early at 6am to give Mommy and Daddy some extra time to sleep in the morning. My sister is spending the night at Grandmom and Grandpop's house so Mommy and Daddy only have to take care of me.

P.S. Mommy and Daddy just told me that all of my Beef and Beer tickets are sold. I'm sorry I can't come and see everyone, but I'm not allowed to be around that many people. Mommy and Daddy are really excited though, they can't wait to see everyone and to thank everyone for all their help. I gotta go and say my prayers before I fall asleep.

Goodnight, love Ally

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Mon, Nov 8, 2004 10:00 PM
Surprise!! Today I came home. Can you believe it? Mommy and Daddy thought this day would never come.
What a long day it has been. We left duPont at Noon, and arrived home by ambulance around 1:30p.m. The day was extremely busy. There were many people in and out of the house to help set up equipment, and get me settled in. All my nurses have been great so far. We'll see how my first night goes tonight.

Mommy and Daddy are very tired, and know that this week will be very busy. Tomorrow, at noon I have my first doctors appointment with the pediatrician.

Sister Ashley also has been great at welcoming me home. She brought many of her toys in to my room to show me how to play. I think we are going to make great playmates & sisters!

Before I doze off to sleep, let me thank you all once again at helping Mommy & Daddy get me home, safe and sound. If not for all your prayers & well wishes, I'm not sure all of this would have been posssible. Thank God, for all you great nurses and doctors for taking such great care of me. You all have been such a huge part at getting me home. I will miss you all, but will always keep you close to my heart.

Please remember to keep checking in on me. Even though I'm home, we still have a lot of work ahead of us. One thing for certain, we will continue to forge ahead, and make progress on getting me better.

P.S. If you would like to visit, please feel free to stop by. But call first. 215-234-9686. No colds or virsus please :)

See and talk to you later.
Love Ally

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Thu, Nov 4, 2004 10:00 PM
It feels like forever since I have updated this site. Ally has been doing well. Her doctors are busy trying to make some final adjustments on her feeds and IV fluids.

Ally's body didn't really agree with that low carb high protein formula. She must take after me I prefer carbs over protein! Today I talked with her GI doctors and they are switching her back to the formula she was on before.

Our 24hour stay over went fine. Ally slept all night which made it even easier. We had a big meeting yesterday and Ally's home nursing agency was there. Three of her nurses for home were there and meeting them definitely releived some of our anxiety about having people in our home. She currently is assigned to five nurses so we need to meet the other two.

We do have a pretty definite date for Ally to come home, but we still aren't sharing it. However, we will probably post it soon! There are still tickets available for Ally's beef and beer. The information is posted below. Don't forget to keep checking for the homecoming update!!!

BEEF & BEER

Saturday, Nov. 20th
7p.m.–11p.m.

King of Prussia Fire Hall
170 Allendale Road
King of Prussia, Pa.

Live Entertainment by
ROCKHARDFORTY Band

Tickets are $30.00 and advance sale only!

For information and tickets call:
Jeanne Ramella 610-287-4634
Joanne McTamney 610-828-3760

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